[This page is Jorn Barger's revision of the original here.]

photos 

These photographs clickable below are of me. I fear imagination conjuring my features into a fictitious freakish shape, readers manipulating words such as "locked-in" and "profound disability" and "neuro-developmental disorder" with ignorance & naivity until I am not a normal being of flesh and feeling but a pitiable alien thing. The photos depict a fragment of a busy life. Please see under aspirations for the path I seek to travel and disability and/or cv if the above confuses you.

I also direct the taking of photographs, particularly black & white ones.

 

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bright bab undiagnosed as profoundly disabled
unable to play and crawl roll babble sit but button-bright
"not much wrong with her"
The Street, Tankerton, July 1987

 

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I leapt into mainstream school at 5 already able to chatter using a silly system of spelling felt by my hands-on carers in Nursery home and OT. As my clinical psychologist explains it: it has never been a private language with mother. (Mum is most habituated to me though.)

 

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Din within turned to choral singing and I turned to John Tavener for help.

I left school, wrote a lot of music, gained entry at 8 to a prestigious London college to work on a special place one day a week alongside undergrads and grads. It made me very happy and I thought I'd found my metier niche and element.

 

 

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little girl of 9 proud and confident
naive fool
battle scars to come

 

in my element of breezing sunlight, wild empty quiet space, the ocean gently lullabying song into fragrant wind

soul winging free
sitting on a Hebridean shore summer 1996

 

dancing songs from yonder year yonder from far off beyond the horizon of imagination beyond life beyond me yet within me arrive bubbling gently as I sit flitting feet within cool deeps

paddling at Fidden, my beloved Hebridean shore, summer 1997

 

sturdy rock-like bro
loves me as I love him
the 2 of us are picnicing in Scotland en route to our Gran's burial service
he wants to be an architect
I want him to be an architect
I want him to be close to me
and shield me from the buffeting bullies of bureaucracy

 

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c'est moi maintenant!

 

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e-mail comments or queries to hojoy@rmplc.co.uk

 


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